Acceso A La Meva Salut (PLUS ◆)

Legally, your health data belongs to you. Practically, it belongs to the institution that produced it. Can you permanently delete an incorrect allergy entry? Can you prevent a specific specialist from seeing your mental health history? In most cases, no. “Access” stops at read-only.

| Layer | What it means | Current status in LMS | |-------|---------------|------------------------| | | See your data as raw information. | Mostly achieved. Lab results and reports are visible, though often delayed. | | Understanding | Interpret jargon, units, and clinical context. | Weak. Results appear with medical terminology (e.g., “neutròfils,” “creatinina”) without lay explanations or trend visualizations. | | Acting | Use the data to make decisions (second opinions, lifestyle changes, sharing with other doctors). | Very weak. Data is siloed within the Catalan public system; exporting it as a machine-readable file (not just PDF) is complex. | 3. The Unresolved Tensions A. The Waiting Game A lab test done on Monday might appear on LMS by Friday—but your doctor saw it on Tuesday. “Access” is meaningless if the patient is the last to know, especially for critical results. Ethical protocols often delay release to avoid anxiety without counseling, yet that same delay can erode trust. acceso a la meva salut

Until a patient can seamlessly share their full record with a specialist in Germany, correct an error without a lawyer, or receive a critical lab result the same minute as their doctor, we have not arrived. We have only opened the door. Legally, your health data belongs to you